Wear a Purple Ribbon
to help raise awareness!
These articles are downloadable forms of the Handouts that are given at the meetings. All rights are reserved to the original authors.
Webmaster's note: Some of these files are somewhat large, I have made them as small as possible, but if you are using a dial-up modem it could still take some time to download.
Note to Mac Users: It has come to my attention that .zip and .exe files might not be readable. Please download Adobe .pdf files, where available, and if you download a .zip or .exe file, use the program "Stuffit" to open the files, and this should solve the problem. If you have problems displaying the unzipped files try using Netscape, as this might work also.
Member Stories:
Stories Written by members about their disorders. Click Here.
Diagnosis Aids:
Fibromyalgia Clinical Diagnosis - Official Diagnostic Criteria and list of "Tender points" for Fibromyalgia, as defined by The American College of Rheumatology (ACR) in 1990.
For a more in-depth Abstract on all facets of Fibromyalgia download one of the versions below. Provided by the National Fibromyalgia Partnership, Inc. http://www.fmpartnership.org For personal use only, for-profit copying is prohibited under Copyright. Approx. 270KB
To save a download file, put the mouse pointer over the underlined word, "Right Click" (push the right mouse button, and a menu will come up), then select "Save Target As" or "Save Link As". It will ask where you want the file saved, and upon completion, "double click" the file and it will automatically open and will be ready for use.
Lupus Diagnosis - Background information and diagnosis criteria for Lupus. Provided by the Lupus Foundation of America.
Chemical Sensitivities - Background information and help dealing with Multiple Chemical Sensitivities Disorder.
For a MS Word Document describing the background of MCS, download at the link below. Provided by the Chemical Injury Information Network,
White Sulphur Springs, MT 59645
406.547.2255 Voice
406.547.2455 Fax
To save a download file, put the mouse pointer over the underlined word, "Right Click" (push the right mouse button, and a menu will come up), then select "Save Target As" or "Save Link As". It will ask where you want the file saved, and upon completion, "double click" the file and it will automatically open and will be ready for use.
Handouts:
Fibro Checklist - Good for letting your doctor, family, lawyer, etc. know how you feel on a daily basis.
FMS Pain Scale - There are several of these out there, but this is geared to those who suffer from FMS. Works well in conjunction with the Fibro Checklist.
Hepatitis Rheumaoid - Article from Dr. J. Mercola about a study in France that linked Hepatitis B Vaccination in Children to later development of Rheumatological Diseases.
Fibro Exercise - Article from Reuters News Service about benefits of exercise for FMS Patients.
Downloads:
All downloads labeled as HTTP, are in self-extracting format. Once downloaded, extract to a folder and open the HTTP file.
To save a download file, most of you should be able to just click the underlined word and follow the steps. If it does not work, put the mouse pointer over the underlined word, "Right Click" (push the right mouse button, and a menu will come up), then select "Save Target As" or "Save Link As". It will ask where you want the file saved, and upon completion, "double click" the file and it will either automatically unzip or will open and be ready for use.
Fibromyalgia Informational Brochure - 249 KB - Adobe .pdf - Informational flyer from The Arthritis Foundation of America, www.arthritis.org
Chronic Fatigue Power Point presentation from April 2006 Meeting - 157 KB - Requires Microsoft's PowerPoint Program in order to view. - In MS Presentation (.ppt) format.
Things to Ask for In a Checkup - 473 KB - Adobe .pdf - Article from Bottom Line Health Magazine..
Prolotherapy - 22 KB - Microsoft Word .doc - Article text from Bottom Line Health Magazine.
Caregivers - 77 KB - Microsoft Power Point .ppt - The presentation that was given at the 2nd Annual Fibromyalgia Conference in Greenville on 10/22/2005. Deals with things that Caretakers of Fibro patients need to consider and remember.
Letter to the News Media - 774 KB - Adobe .pdf - The letter that is hoping to start the "Million Letter Campaign" to increase Fibromyalgia/CFIDS/ME Awareness. To be sent on May 1, 2005
SC DNR Form - 189 KB - Adobe .pdf - The South Carolina Do Not Resuscitate Order Document. Legally binding, but must be signed by a Physician.
SC Health Care POA - 843 KB - Adobe .pdf - The South Carolina Health Care Power of Attorney Document. Legally binding, must be signed by 2 non-related witnesses.
Neurologist - 208 KB - PDF - Article titled "Neurosurgeon Offers Patients Hope for a Present-day Miracle" from the Spartanburg Herald-Journal Newspaper.
Study - 58 KB - PDF - Information sheet for experimental treatment study at Ohio State University.
YMCA - 43 KB - PDF - Signup sheet for the Fibromyalgia Water exercise class at the YMCA.
Meeting Flyer - 45 KB - Adobe .pdf. For proper printing, use front and back printing option, this will create a 5.5" wide x 8.5" long flyer that you can pass out.
Fibromyalgia Power Point presentation from October 2002 Meeting - 79 KB - Requires Microsoft's PowerPoint Program in order to view. - In MS Presentation (.ppt) format. Click Here to Download a Text version of the Presentation - 28 KB- In MS Word (.doc) format.
November FFCSN Presentation Notes from November 2002 Meeting - 27 KB - In MS Word (.doc) format.
Lupus Research Pack - Contains 3 Articles from WebMD.com dealing with new treatments and research for Lupus (SLE) - 50 KB - Downloads to a self extracting .zip file that will contain 3 documents in MS Word (.doc) format.
January FFCSN Presentation Notes from January 2003 Meeting
Download in:
MS Word (.doc) format - 37 KB or MS Power Point (.ppt) format - 137 KB
Pain You Can't Imagine - 381 KB - PDF - Article about Fibromyalgia.
"People with limited Mobility Don't Have to Miss out on Joy of Gardening" - Article printed in Spartanburg Herald-Journal, By: Kathy Barberich - 161 KB - In .PDF Format
Chiropractic Handout Pack - Contains 2 pages from the Handout given by Dr. Peters at the March Meeting - 790 KB - PDF.
Exercise and Stretching Pack - Contains 6 pages from a handout given by Dr. Peters at the March Meeting - 1.75 MB - PDF.
Chemotherapy Study Article - Article from Ivanhoe News Service, about use of Chemotherapy to treat Lupus - 36KB - in MSWord (.doc) format
CFS Research Article - Contains an article distributed by Ivanhoe News on current research for Chronic Fatigue Syndrome - 22 KB - in MSWord (.doc) format
Custom Health Solutions Handout - 3 page outline from June Meeting - 30KB - in MSWord (.doc) format
Homeothopy Handout - From June Meeting Presentation - 9KB - in MSWord (.doc) format
Custom Health Solutions Pamphlet - From June Meeting Presentation - 733KB - in Adobe Acrobat (.pdf) format
CEDSA Pamphlet - From June Meeting Presentation - 1.5MB - in Adobe Acrobat (.pdf) format
SRMC Fibromyalgia Class Information - From July Meeting Presentation - 8KB - in MSWord (.doc) format
DrWeil.com FMS/MCS Article - From June Meeting - 25KB - in MSWord (.doc) format
Links to commonly asked for items:
Listing of Rheumatalogical Diseases